Monday, June 5, 2017

#NationalDoctorsDay

taken from my facebook:

my journey with #Lupus (#SLE) has been magical and mystical all through the cycles of chronic pain and fatigue, going from immobile to semi-mobile to bionic woman thanks to my artificial hips (finding balance across the disability spectrum is not easy nor a straight path; disability is queer), and lessons (and still learning) for disability justice and liberation. as i hit close to a decade living with this degenerative autoimmune disease and in remission now, more functioning and having gained back a little power over my body, some of my earlier Lupus stories are hard to think of as truths... like damn, did i actually survive all of this? was my pain actually enough for me to handle so fiercely?

i hear it's #NationalDoctorsDay (even though y'all already get so much attention for becoming a doc in the first place) but petty aside, i have worked with dozens of doctors over the years trying to make sense of it all, many of whom have left lasting impressions on my life. while i'm critical of our shitty capitalist medical institution and the pharmaceutical industry and scared af to actually return to the US to manage my disease, i wanna thank some of the specialists i've had the pleasure to build with and see practice medicine with empathy.

thank you Dr. Laura Barinstein (rheumatologist; she diagnosed me with Lupus); Dr. Irina Kazachkova (endocrinologist; always up my ass to lose weight but supported me through Steroid-induced diabetes and high cholesterol); Dr. Ajoy Sinha (no doctor was prepared to perform a hip replacement surgery because i was too young; thanks to Dr. Sinha, i have a functioning left hip); Dr. Juan Kupferman (nephrologist); Dr. Alana Levine (adult rheumatologist); Dr. Kenton Fibel (orthopedic surgeon: knees and shoulders); Dr. James Chevalier (adult nephrologist); Dr. Edwin Su (orthopedic surgeon difficult to book an appointment with; my right hip needed immediate replacement surgery, i had no health insurance, and this guy cleared his schedule to perform the surgery within days). thanks for making it a tiny bit easier to navigate the mess chronically ill, disabled folks face with doctors, in hospitals, etc.

No comments:

Post a Comment